National Data Opt-Out

What is your data and how is it used?

Your health records contain a type of data called Confidential Patient Information. Information about your care such as treatment and diagnoses is collected whenever you use a health and care service. It is also used to help us and other organisations for research and planning, such as research for new treatments, deciding where to put GP clinics and planning for the number of doctors and nurses in your local hospital. It is only used this way when there is a clear legal basis to use the information to help improve health and care for you, your family and future generations. 

Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.

You can choose to stop your confidential patient information being used for this purpose. You can also make a choice for someone else under the age of 13. 

 
You have a choice

If you are happy with the way your information is used, you do not need to do anything. If you do not want your confidential patient information to be used for research and planning, you can choose to opt-out securely a number of different ways. You can change your mind about your choice at any time.

data sharing

Type 1 or Type 2 Opt Out "National Data Opt Out"

Type 1 - prevents information being shared outside a gp practice for purposes other than direct care. Please complete this form and return it to reception.

Type 2 - prevents information being shared outside NHS digital for purposes beyong the individuals direct care. On ways to opt out of this, please continue reading. 

How to Opt-Out

You must register your choice to opt-out (you only need to do this once), and that registration applies to all healthcare settings and organisations, not just general practice.

You can do this by using the Online Services - patients registering must be aged 13 or older, have access to your email or mobile phone and have your NHS number or you postcode registered with your GP surgery.

You can also make a change of choice for;

  • Yourself by calling the NHS Digitial Contact Centre on 0300 303 5678 - Monday to Friday, 9am to 5pm (excluding bank holidays). 
  • Yourself or someone else by filling out the opt-out form and returning it via email to the Contact Centre - enquiries@nhsdigital.nhs.uk 

Alternatively, you can post the form to:

National Data Opt Out
Contact Centre
NHS Digital
HM Government
7 and 8 Wellington Place
Leeds LS1 4AP

The National Data Opt-Out choice CANNOT be set by the GP or other members of the Practice Staff

Find out more about other way to make a choice

 
Will choosing this opt-out affect your care and treatment?

No, choosing to opt out will not affect how information is used to support your care and treatment. You will still be invited for screening services, such as screenings for bowel cancer.

Please note that the National Data Opt-Out is NOT the same as your Summary Care Record (SCR). For more information on your SCR please click here

 

Patient Leaflet